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September 19, 2013 By Kimberly
I have been asked how the older girls are doing and how much do they know and understand. On Saturday, the day after we found out, we explained in very simple terms to all three what was going to happen in the near future. Later that day I was with just the 2 older girls and told them more, still leaving out the really scary details. My oldest was making frightening faces as I was explaining. I didn’t think she was going to be ok. She is my super sensitive, emotionally tender child. But, she said she was fine and immediately went on talking about something else. My second didn’t say anything but it didn’t seem to phase her either. I left that conversation thinking they don’t get it at … [Read more…]
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September 18, 2013 By Kimberly
Haley was released from the Outpatient Clinic. We were on our way home to pick up everyone and go to the other hospital when my mom called. She started out with, “What do you know and what do you want to know?” I said I didn’t know a lot. She kept saying it is benign, it is benign. That was the best news of the day. She reminded me she used to work with some Doctors, nurses and staff members in Neurosurgery. That was comforting. After dropping off kids and making sure the other girls were taken care of after school we were up at the hospital as soon as we could. My Mom met us up there to make sure we didn’t miss asking questions we needed to ask. From the moment I walked in and told them … [Read more…]
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September 18, 2013 By Kimberly
Plans worked out that I was able to take Haley to her MRI alone. If the baby became hungry before we returned Jeremy would give him a bottle. If that didn’t go well they would meet me at the hospital to feed him. At this point we were happy the hospital was only 10 minutes away. We checked in, went to a small room where the nurses did their regular check up and took some history. Then they had Haley sit facing me on my lap and holding her arm a particular way so they could put an IV in her tiny hand. She was very brave and didn’t cry or make a peep. They wrapped her hand so she wouldn’t take it out with yellow tape with bees on it. Then came the waiting game. We were in that tiny room for … [Read more…]
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September 18, 2013 By Kimberly
We had the appointments scheduled for the two specialists so we were just waiting but not necessarily worried. One night we were watching the news when they talked about someone going in for brain surgery to remove a tumor. I remember thinking she is going to have a brain tumor, but then thought I was just being crazy. I took her in for her Neurology appointment. We first saw the PA who was doing some motor tests with Haley. He said, “touch my finger, touch your nose, touch my finger, touch your nose” while moving his finger from the right to the left. She did it perfectly with one hand. Then he wanted her to switch hands and repeat the test. He started again, “touch your nose, touch my … [Read more…]
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September 17, 2013 By Kimberly
We went on vacation in March when the kids were off track. The first morning on the road Haley had cereal for breakfast, nothing out of the ordinary. Immediately after finishing she threw up. I really do mean immediately. She swallowed that last bite and up it came. She asked to be held, which was uncommon because she is a mover and a shaker. She fell asleep immediately in my arms. Again, it was within 30 seconds! It was not even 8 am and she was already taking a nap! How strange is that?! She repeated this process exactly the next day. The day after that she looked sick, but she didn’t throw up. She was tired and wanted me to hold her but after a few minutes she didn’t fall asleep and … [Read more…]
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September 16, 2013 By Kimberly
This past week my family has been through quite an ordeal. We went from discovering our Little Chef H, Haley, was having seizures to discovering just a few days later that she has a very large brain tumor and surgery is within 7-10 days. She is a very unique case because she is 2, the tumor is large and the type of tumor is difficult to remove. My focus at this moment needs to be primarily on her needs. If we need a distraction we might post something here and there. (We were really looking forward to Halloween!) For the most part I will be posting updates as they come to keep especially our family and friends updated because there isn’t enough time in the day to call everyone … [Read more…]
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